First of all, I would like to put across that whatever written is based on my experiences and I am no expert but I am more of a mommy who is basically still learning and forever learning to adapt with her own kids.
To those who knows and follows, both my daughters were born ‘Special’ or in other words ‘Kanak-Kanak Istimewa’ and so, initially when both Hubby and I got to know about it we were very sad, lost for words and weak.
However, from time to time we were able to pull it through and our daughters are slowly picking up bits and pieces to join the rest of the so-called ‘normal’ community.
I feel that it is not easy to adapt and cope with ‘Special Kids’ and so, I thought it would be useful if I were to share my personal experience on ‘Special Kids’ and plus, surroundings are basically not giving much support and so, what parents have are families, friends and support groups for help.
Thus, I strongly believe that it is beneficial to educate the community about it and even though it is not much, but at least it’s something to BEGIN with.
In time to come I will try my best to cover as much as possible, such as on :
• How to accept the fate?
• What was my reaction when I first know about it?
• How do we, the parents cope?
• What are the symptoms?
• And lots more…
So, for today I just want to share on “How & When” I started to realize that my kid’s were different.
Both Kakak and Dedek were born normal without any indication of them being ‘different’ and my pregnancy was smooth with no complications at all.
It all started 7 years ago, when Kakak was just a year plus. She was behaving normally for her first year and she never miss any milestones. However, it all stopped when she was supposed to start walking. Somehow, she just stood still and didn’t move any further and same goes with her speech. She made sounds but none of it is something that we could understand.
We brought her for a check-up in Putrajaya Hospital and ever since then, the doctors did several test from ‘hearing’ to ‘eyes’ to ‘CT scan’ to ‘MRI’ and for every check-up, she never fail to undergo blood test.
Another incident which alerted me was when, she was on my lap and she was playing with her hair and suddenly, her palm was full with hairs and then, I notice that her hair falls. Earlier, Kakak was always bald. She never really had hairs. Once her hair grows then, after 3 months, it just falls off again until people who saw her thought that she had chemotherapy. Poor Kakak!!
Apart from that, she always gets high fever like every 3 months and she actually get the full cycle of fever, flu and bad cough. The worst was she had to be admitted for 5 days.
Starting with all those, I became worried and I stop myself from thinking of the nonsense and just bring her to see the doctor right away.
So, folks, if you ever encounter any of those or maybe even other stuff that worries you, wait no more and just go ahead and bring them to the doctors even though it seems as though that it was nothing.
Why I say that is because sometimes ‘outsiders’ or ‘people in our surroundings’ might give a remark saying that ‘it’s ok, nanti lelama boleh jalan lah tu’ or ‘tak per, budak biasalah kadang cepat, kadang lambat’ or ‘ala, tak yah risau lelama boleh lah dia bercakap’.
But, I tell you there’s no harm in checking it with the experts because it is definitely much better to get to know it earlier than later. At least, we could take action before it gets worst. I mean, once we have acknowledged the problem we could probably start thinking of their future such as finding places for therapies, looking for appropriate schools and I tell you, this is also not easy and also, register them with JKM (Jabatan Kebajikan Masyarakat) to get privilege from the government and many more.
I guess, that’s it for now and I will share more on the rest of the topics some other time. Feel free to share with me your experiences and your thoughts.
Sure hope to make a better place for the ‘Special Ones’.
My 'Special Kids'
2 confessions:
thanx beb for d sharing...
No problem, beb! Sharing is caring kan.. ;).
Post a Comment