..Special Kids : How do you handle the news and how do you cope when your child is born with disability?..

Note : Beware because this might be a long entry ;). Thank you!

Scenario A:
One was supposed to be happy knowing that her confinement period has ended. However, it’s actually a start for a very new beginning for her. She found a big bump or lump on her baby’s back. They brought her baby to the hospital and the results came out, and her baby was diagnosed with scoliosis. Scoliosis is actually a problem that a person’s have with the curve in the spine.

Her baby is already a year old but she just learned how to sit and there’s nothing much that they can do because according to the doctors, surgery can only be done when she is 18 years old when she has stopped growing.

Ever since she knows about her baby’s condition, life for her has never been the same. She became quieter. She’s always crying. She prefers not to talk about her baby and her family & friends does not even know what to do or even how to behave around her and the baby. Everything became so awkward.

Scenario B:
She is a Down Syndrome kid and initially, her mother cannot except the fact that she is born with disabilities. Her mother was so sad and somehow, she could not face the society.

Having said that, her mother sent her to Ipoh to stay in one of the disability center in which looked after special kids for 24 hours a day for 7 days!

While she learn how to survive and be independent by herself, her mother was back in KL, continuing on with her mother’s own life with the rest of the family and only monitoring her progress and improvements from far.

Based on these two scenarios you could see how entirely different a person would react from the news that they have gotten about their kid’s illnesses. Scenario A shows that the mother was trying to accept the kid’s condition by crying, not talking and sharing with others and most of the time, try to swallow the pain all by herself and as for Scenario B, the mother was probably shocked and didn’t know how best to react and how best to raise a special kid and instead, she put her kid in a disability center and so, she could move on with her life as well as her kid is treated properly.

You see, I am as well not excluded as me, myself I was given ‘two special’ kids in my life. People around me always asked on how I cope myself with it. Frankly, earlier stages was by far the hardest for me and hubby until we didn’t realized how long it took us to be and act normal again!

I still remember, the moment the doctor told me that my kid was ‘special’, there was not much of a reaction from me and maybe because I needed time to digest the big news. I continued life without thinking much about it and just move on until, one day when I was supposed to get permission from my big, big boss for time-off or leaves because I had to bring my kids to hospital like almost every week and my annual leaves are just not enough and during that very moment, for the very first time, suddenly I broke into tears.

Perhaps, I have been keeping it to myself for too long and I never really want to talk about it as I don’t even know what is there to talk about and plus, as if I can change anything, right?

Only after that, I start to realize that it was not a dream and it was the truth. The truth that is very hard for me to bear.

But, with TIME the broken and damaged feeling will HEAL.

Angels of My Heart

Accept everything about yourself — I mean everything, You are you and that is the beginning and the end — no apologies, no regrets. ~Clark Moustakas